Nation Radio is proud to announce our Charity of the Year for 2018 is Kidney Wales
Nation Radio is proud to announce that Kidney Wales will become our official charity of the year for 2018.
Throughout 2018, Nation will help raise awareness and fundraise for Kidney Wales to ensure they can continue to support families in Wales.
Did you know?
Kidney Disease affects over 10,000 people in Wales, and is increasing particularly in young children. It’s a life long and life threatning illness which dramatically changes the life of the patient and their families. Living with the condition can involve lenghthy dialysis sessions sometimes 10 hours a day every day, and then there’s the lengthy wait for a transplant. Patients will also have strict diet restrictions to follow, overlooking these can result in fatal consequences.
So who are Kidney Wales?
For over 50 years, Kidney Wales have led the way in improving the standard of
care for renal patients and changing the culture of organ donation here in Wales. Over the years the funds raised have enabled us to provide life saving treatment, fund staff at and refurbish the Kidney Wales Children’s Kidney centre and support families financially with costs associated with their treatments. Our most recent success and most significant achievement to date was our key involvement with the passing over the new Deemed Consent law on Organ Donation in December 2015.
Looking ahead to continue our works supporting families living with this chronic condition, we plan to open a Wellness Centre in Wales, which will act as a place of respite for kidney patients and their families who may be struggling with the day-to-day hardships of life with kidney disease. The planning stages is well underway with the feasibility study being undertaken, and the team are very excited about the continuation of this project.
2018 will see the renovation of the dialysis area on Pelican Ward at the University Hospital of Wales where the children receive their treatments during their stays in hospital. We hope through funding this project it will improve the experience for families, and help make their time on the ward a little more bearable. We also continue to fund 2 playworkers and a Social worker supporting the 500 families who visit the centre.
Barney was born with Chronic Kidney Disease, caused by PUV (Posterior Urethral Valves – a problem that occurs in some baby boys from birth). He must take 7 types of medication every day and visit the Kidney Wales Childrens Centre at least every two months for check ups. For his parents Samantha and Owen, it is a daily struggle to keep Barney eating, to keep him hydrated and protect him from infections and viruses.
With an overactive bladder and his kidneys at risk of completely failing, there is also a daily risk of urinary tract infections so any sign of illness from Barney means a trip to the doctor or A&E.
For Barney, his condition means a lifetime of treatment and medication, he will likely need a kidney transplant in the near future. Despite having to go through all of this, Barney keeps a smile on his face and enjoys playing with puzzles and making lots of noise with his drum.
With your support we can continue to be there for Barney, supporting his family as they live with the daily burdens of this life long condition.